I've written and failed a couple of different blog entries since 6/24, but both of them have been so confusing when I read back over them before I went to publish them--I just clicked "close" and figured that you could be uninformed except by word of mouth, or an occasional facebook post. I've obviously been on too many drugs until now to say anything intelligent.
In my last post, I painted a rosy picture of how things were going. Immediately following that, the proverbial "poop hit the fan." The shocking, which I began to describe in my last post began to hit full boar. Most people, once they have the gastric pacer installed never feel an electrical pulse at all. However, because of my size and weight, and because I'm just "lucky" (please read my dripping sarcasm)I have abnormally thin abdominal walls--thus could feel the shocking constantly once I began to back off of my narcotic pain meds. It hurt HORRIBLY. Like, much worse than the vomiting ever did. Imagine the pain that you feel when you shock your friend from dragging your feet on the carpet. Now, think of that happening every 5 seconds in the same location directly under your rib cage. All day and all night, without a break of any kind. I was not pleasant to be around. ARGH. It was horrific. So, the doctor turned my pacemaker down after two days of that. ( I couldn't get there sooner because I was in Tri-Cities while Marcus was climbing Mt.Rainier--he made it to the top!!)
So, the doctor turned the pacer down, and I haven't been having as much pain since then. But, now I'm back to puking all the time--because it's turned down so far that it's like it's not even in there. Ugh. SO FRUSTRATING. So, I got really dehydrated and almost passed out again, and have had to get fluids weekly since then. But, before that I did get to go on a family camping trip, and hang with some friends in the Tri-Cities, so I've been having a good summer. Busy, full of sun, exhausting, full of puke, pain, and frustration.
I just went in to see the doctor again yesterday. He turned up the pacer again. I've only had one bout of shocking so far. Please pray that this trend continues.
Love.
b
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